Thursday, 20 May 2010
Eight years on
I was struggling with the photocopier. How many bits of paper can get jammed in one machine? Text message: who's that? Well, it was from the Mrs., forwarded from Stan's speech and language lesson. A video of Stan, clearly saying: "XXX is eating chocolate cake."
The text came in eight years to the moment that Stan was being prepped for his first heart surgery on 20 May, 2002.
It was a wonderful moment this morning because it reminded me of how far we've come. And reminded me of the amazing friends and family that stood by us in our darkest hour. And reminded me of the incredible team at Great Ormond Street who I thank every minute of every hour for saving Stan's life.
Thanks to them, every time I look at both of my boys, my heart skips a beat.
at May 20, 2010
Down's with the kids - The book / Audiobook / The podcast
I’m nervous writing about this. Not because it’s not a great and positive story, but because of the way people have reacted and may react....
Autism / Too much information The latest film in the National Autistic Society campaign: five ways to help stop an autistic person from fee...
Religious leaders seem to be falling over themselves to be relaxed and groovy about Down's Syndrome. First you had the General Synod dis...